Been a bit of a rough day emotionally for me today.
The DWP Dr. came round this afternoon for my home assessment, that in itself proved to be something I needlessly worried about, the guy was really nice.
However, he expressed concern over my ‘sleepy fits’ as I call them, he says that’s not ‘usual’ for CFS and ‘raises the issue of Narcolepsy’.
Great.
Just as I get used to having one thing I get told I may have been misdiagnosed – or even worse as Stef put it, I could have a mixture of both.
Anyhow, it also turns out the lass I’ve been speaking to at the hospital whom I thought was the specialist is in fact the staff nurse or some such, this means I haven’t been formerly diagnosed anyway! All that’s happened is they’ve tested me for everything under the sun and somewhere along the line it’s been put down as CFS by someone because all blood tests came back clear.
After 10 months you’d think this would have been noticed!
How come I’ve not actually seen a specialist yet despite 2 hospital appointments for just that purpose? Why have I only seen a nurse? I mean, no offense to the lass – she’s really nice and bloody helpful, but as far as I’m aware a nurse isn’t supposed to diagnose and suggest treatment.
Please enlighten me if I’m wrong about this, it wouldn’t be the first time I got stuff mixed up – after all I thought Narcolepsy was something you were born with when instead it can apparantly come on at any time.
So yes, not the happiest of souls today.
Though many a hug have I been given so it wasn’t all bad – hugs are good! And I had comfort food: Bangers and MASH with onion gravy (I make a great onion gravy) and I have much tasty snack food to see me through to next week, Jaffa cakes, chocolate, biscuits, cheese and crackers, fruit… Yup, all stocked up and ready to binge…
After that I’ll eat healthy.
Really I will…