http://rosevibe.me.uk/blog/2009/05/03/but-you-dont-look-ill/ Wed, 30 Jun 2010 18:58:24 +0000 hourly 1 http://wordpress.org/?v=3.0 http://rosevibe.me.uk/blog/2009/05/03/but-you-dont-look-ill/comment-page-1/#comment-55732 Jlex Aamie Mon, 10 May 2010 10:28:06 +0000 http://rosevibe.me.uk/blog/?p=938#comment-55732 A persons physical appearance has little or nothing to do with their actual health. My genetically inherited disease effects my ability to learn, concentrate, remain positive and confident, and potentially far worse. In my experience possibly the worse thing you could say to somebody you don't know very well is that the reason you can't do something is because you are not well. Generally people are not very understanding, in the larger majorities eyes "look well == are well" and us sick people who carry healthy looking frames are unlikely to change their opinions very easily. Its easier sometimes to just accept that the truth is, they don't actually care. A persons physical appearance has little or nothing to do with their actual health. My genetically inherited disease effects my ability to learn, concentrate, remain positive and confident, and potentially far worse. In my experience possibly the worse thing you could say to somebody you don’t know very well is that the reason you can’t do something is because you are not well. Generally people are not very understanding, in the larger majorities eyes “look well == are well” and us sick people who carry healthy looking frames are unlikely to change their opinions very easily. Its easier sometimes to just accept that the truth is, they don’t actually care.

]]> http://rosevibe.me.uk/blog/2009/05/03/but-you-dont-look-ill/comment-page-1/#comment-54427 Lucy Mon, 22 Mar 2010 11:53:34 +0000 http://rosevibe.me.uk/blog/?p=938#comment-54427 Good on you - this is a wonderful piece of writing which captures well what us ME sufferers go through. Thank you Good on you – this is a wonderful piece of writing which captures well what us ME sufferers go through. Thank you

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